So today has been a bit of a "Mass uploads" day and decided to end the Hiatus that I didn't realise I had even gone on until recently. I had so many pieces just sat here on my computer and I kept saying "I'll upload it later" for a while. My bad habit of procrastinating strikes again really. OK so there are medical Seph pics, kind of a reference to how I feel right now (except he's more inclined to go and get treated whereas I try and do it all myself because I hate the hospital. Last time I was there, the consultant told a load of lies about me and to be frank, I didn't feel safe there) and I guess he probably hasn't been feeling too great himself.
One good thing has been the introduction of proper, professional carers again. I had them before but when they had some kind of funding cut, they were withdrawn from most people, except the really old or practically dying. My needs have changed and like it or not, I have to accept the fact that I am kind of at that stage where things aren't going to get better and eventually I am going to need a transplant, which means that I will be waiting for someone to die so that I can live.
I did take some time out from May, when I got my diagnosis and was told that I was essentially dying and would have 5-7 years before becoming desperately ill. I know it sounds incredibly selfish but I did need time to get my head around things, not to mention concerns for someone close to me and their health. It all happened in the space of a week and the group were all knocked back by it. I can't say for sure how my friend feels but he has done his best to make sure that I am having the best possible chance and he has taught me not to be afraid of confronting doctors (because let's face it, some of them can be assholes). I guess I felt bad because he received his diagnosis after mine and I was still reeling and couldn't help.
Since being on oxygen my life has improved a lot. I am able to do more and spend less time bedbound (even though today was a kind of bad day for me) and hopefully I can upload more and more stuff so you know I am still active and still making art for you all.
Take care friends!